Libby Huffer, who endured torment from bullies calling her “lizard breath” and “toad” due to her condition, has undergone a remarkable transformation after surgery to remove a significant number of tumors covering her body. Libby, diagnosed with Neurofibromatosis, a genetic disorder causing non-cancerous growths, faced chronic pain that even a simple hug could trigger.
Following her story’s exposure, she received specialized treatment through the TV show The Doctors. Libby underwent two surgeries, including electrodessication to remove 1,000 facial tumors and CO2 laser treatment to reduce scarring. Her physical appearance improved significantly, prompting her to hope for further removal of the remaining tumors.
Despite her struggles, Libby remains committed to raising awareness about Neurofibromatosis, aiming to dispel misconceptions about her condition and provide support to fellow sufferers. She created the ‘Faces of Neurofibromatosis’ Facebook group, now with 5,000 worldwide members, to foster a supportive community.
Libby and the charity Neurofibromatosis Midwest are actively fundraising for medical research and awareness initiatives to benefit those affected by the disorder.
